Germany is to have a nationwide prostate registry thanks to EMHF member Stiftung Männergesundheit (Foundation for Men’s Health).
In Germany high-quality, nationwide comparable epidemiological data on prostate cancer is currently not available. Significant clinical data and details on medical care for prostate cancer patients are only available from isolated cases, in form of temporary, regionally or thematically confined studies.
But since there is no national system of data collection and varying methods of data collection, storage and analysis, comparing the available information is very difficult and the results only partially valid.
Matthias Frölich of German Stiftung Männergesundheit said: 'we agree with many urological-oncological associations that the federal health monitoring in Germany and the multitude of diverse studies and cancer registries fail to provide information on the course of the disease and therapy of prostate cancer. This information is, however, crucial for an improvement of medical care in Germany.
'We are therefore planning the establishment of a nationwide prostate registry. The project aims to combine as many existing data sets as possible and to quickly deliver significant data on the course of disease, life quality and provision of health care.'
In this way, the German Prostate Registry will provide a tool for benchmarking and certification, raise patient awareness and enable the development of innovative therapy concepts.